Disrupting Taboos: A Young Black Muslim’s Crusade Against HIV Stigma

Disrupting Taboos: A Young Black Muslim’s Crusade Against HIV Stigma

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Asha Ulusow
HIV Program Lead, St. Stephen’s Community House; The Neighbourhood Group
Interested in contributing to the I-AM blog? Your story, ideas and insight matter. Whether you’re from a Community Based Organization, independent, or otherwise, we’d love to hear from you!
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As a Black Muslim woman, I understand the unique challenges that we face when it comes to HIV testing. Self-testing is an especially critical tool, and relatively new way in Canada to help people take control of their own health and wellbeing.

There is still a great deal of stigma and shame surrounding HIV in many communities, particularly in the Black and Muslim communities. This can make it difficult for people to access HIV testing services, as they may fear being judged or discriminated against.

Due to cultural beliefs, many people may not feel comfortable discussing HIV or seek testing. This can lead to a lack of knowledge about one's HIV status. It can also contribute to the spread of the virus within the community. It's easy to see how this often grows in to a destructive cycle.

But HIV self-testing can be a way to buff this barrier. And break the cruel cycle. Fundamentally, it enables people to test for HIV in the privacy of their own homes. HIV self-testing can be particularly empowering. For people who may face multiple forms of oppression and marginalization, so, testing for HIV on one's own terms can be life-changing.

There is still a great deal of stigma and shame surrounding HIV in many communities, particularly in the Black and Muslim communities.

We can take control of our own health without having to rely on others. Or having to navigate complex healthcare systems that may not always be designed to meet our needs.

Still, it's important to note that self-tests are not a substitute for professional healthcare, and individuals who test positive should immediately seek confirmatory testing and treatment from a healthcare provider.

I believe that HIV self-testing is an important tool in the fight against HIV, particularly for marginalized communities who may face unique barriers to accessing traditional healthcare services.

I encourage others in my community to learn more about HIV self-testing and to consider whether it may be useful to them.

To delve further, and to get answers to your questions or concerns–and to potentially just speak with someone like you who's already been down this path–you can search here for the support that's the right fit for you.

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